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Showing posts with label Doxorubicin. Show all posts
Showing posts with label Doxorubicin. Show all posts

Monday, June 07, 2010

Day 228 - Receptionists.

This morning I continued my quest to find out more & more information. The Oncologist's nurse called me back & was quite friendly. I still hadn't started the fertility drugs, so my start date of 18 June wasn't looking promising. My stressful day yesterday was feeling further & further away! She informed me of my Doxorubicin dosage, which I will need to clarify if I take the same dosage all the way through or if it fluctuates. If it does, that is great news, because if it doesn't, I'll be nearing the lifetime dose! Yikes!


She also told me my WBC last time was 8.9, which is normal. I asked about the Sedimentation Rate (ESR) & it said on the report that my blood didn't clot... Which I call a great big bull poop on, as my blood clots fine. If you recall, that was the day I had the lady who used my hardened vein, couldn't get a good flow into the vial & had to change the vials a bunch of times. She didn't take enough blood to do the test! Grrr! I'll make sure I get someone different next time. 


The Nurse bumped me to the end of the day's appointments, as I had a lot of questions for the Oncologist. She was very understanding & said that it was okay that I wanted to find out as much as possible. She said it was my life & I had to make the best decisions for me. I was impressed that she said this! Of course, it will still be a challenge to convince the Oncologist that I don't need another CT scan & Bleomycin...


My next call was to Dr. Lategan. He is the Oncologist that my friend Andrea went to. He is South African & arranged for Andrea to be treated at Peter Lougheed instead of Tom Baker. She said he was really nice & pleasant to be around. When I had spoken to my Oncologist's nurse, she mentioned that the Oncologist would be gone for the month of July. I thought I would take the initiative to find out if Dr. Lategan was taking patients & perhaps I could ask my Oncologist if I could be seen by Dr. Lategan for the month he was away. Oh my, oh my... did I get an earful. I'll include the conversation at the bottom of this post.


I was completely stunned. I felt like I'd just stepped out of a bad movie scene or experienced something out of the twilight zone. I have NEVER had such a rude interaction with anyone, even the grumpy passengers I used to have to please on the ship were angels compared to this gal! I was so upset! I called the Medical Registry to find out the procedures for filing a complaint. I found out (the next morning) that if I filed a complaint with the Medical Registry, it would be filed against Dr. Lategan. I don't really want to do this, as I've never met him, but I'm sure he's very nice. My other option was to notify Dr. Lategan of his receptionist's attitude & let him deal with it. I will definitely do the latter, but I'm waiting to see if he'll even see me first! I did send him an email telling him of my intentions, with a small comment about his receptionist's 'ill' behaviour. 


When I spoke to Jaco about it later on, he agreed that the behaviour was over the top & very uncalled for. I felt better, hearing that someone else thought the lady was crazy!


Lawrence stopped by & boosted my car, so I'll see about a quote tomorrow to have the repair work done from the accident. Poor Contemplate! She's no bumper car! 


I spoke with Jenn, finally! She's a busy girl! Sadly, their financial support has fallen through & even though she is working, it's still not enough for them to make ends meet. Mike's paperwork to work in Canada most likely won't be finalized for another 3-5 months, so if you know of any odd jobs & handyman work, leave her a note on the blog. I feel terrible for them, as I can't imagine what it's like to finally have some stability in your life, only to have it pulled away as quickly as it came! 


Her husband, Mike, is traveling to Texas this week to collect the rest of their belongings & bring them back to Canada. Jenn will meet him on the weekend in Montana & then back to Cochrane. She is on her own this week, so I told her if she needs any help, let me know! I haven't babysat since I was 14, but I'll do my best! :o) 


Today was another rainy day, with a nice dump of hail. It did stop raining by the end of the day & the clouds were pretty amazing. I'm still waiting for the heat of summer to come. I love the sunshine! What can I say?


Enjoy your evening... I am!
Love & hugs,
Maria & Valentina
xxxxxx


At least it's not snow!


Little pea-sized hail


Mr. Bull is taking a pelting!


Pretty clouds!


Tucked in bed


Also tucked in bed!

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Here's a recap of the conversation & tail end of my letter to the Doctor:




The receptionist didn’t identify herself & seemed reluctant to talk to me from the moment she answered the phone. It wasn’t until she informed me that I had dialed her direct line that I understood her reservations. I told her I’d found the number online. When I asked to speak with you, she inquired about who I was & what I wanted. I explained my situation and she was immediately defensive.

I asked if you were accepting patients. Her reply was laced with exceptional sarcasm & rudeness:
“Well, you can’t just make an appointment. Your Oncologist would have to discuss it with Dr. Lategan & they would decide what would happen.”
I explained that I was aware of that &, as I had been informed before, I wanted to know if you were accepting ANY patients at all.

Rather than typing impatient, sarcastic, rude, harsh, aggressive & nasty over & over again, just keep in mind those tones for the duration of the conversation.

“Yes, he is taking patients.”
My next question was an inquiry as to how long you’ve been practicing medicine.
“Well, I don’t really see how that is relevant.”
I explained that I certainly did & obviously you are qualified, but I would also like to know how long you’ve been practicing for.
“Long enough”, was her reply.
Okay, is long enough 1 year, 5 years, 10, 20?
“I really don’t see where this is going”, she said. She eventually said she thought you had been in Canada since 2001.

I explained that I have taken the initiative to research & find out as much information as I can about my treatment & that included the Doctors. When she didn’t want to share any information, I asked where I could go to find out.
“The Medical Registry.”
“Okay. Do you have a number?”
“No, I don’t.” Nor could she offer anywhere to find a number.

I then chose to inform her that some of the receptionists I’ve encountered have sure made things difficult. She took this very personally. She made sure I wasn’t indicating just her. I told her, no there were several receptionists that were difficult to deal with.
“I’m NOT a receptionist. I’m a Medical Secretary.”
She went on to explain that there was a difference & she has been doing this job for 28 years, at which point I brought to her attention that it was a bit odd that she could tell me the number of years that she has been working, but could not elude to the number of years that you have been practicing!
After that statement she told me, “You know, I really don’t like where this conversation is going.”
“I really don’t like where it’s come from!” I replied, in complete & utter shock!
At this point she terminated the conversation abruptly.

Additionally, at some point, she asked for my name. I gave her my first name. She asked for my last name. I gave her my married name, which is not on any Canadian paperwork. She inquired about the number I was called from & why it was a different last name. I didn’t bother to tell her I wasn’t calling from my regular phone. When I asked her name, she refused to even share her first name, citing that it was for ‘Privacy reasons’.

I understand that everyone has bad days. However, considering the job she does, she should be accustomed to dealing with people in a FAR GREATER compassionate way than what she did with me. I am fairly tough skinned, but I don’t appreciate being disrespected for asking a few simple & completely relevant questions. There is no reason why I should be treated by a complete stranger. I have every right to inquire about someone’s experience, especially when my health & future are at stake.

If I were a Stage IV cancer patient with a few months to live, that stressful phone call would have cut out a month for certain! That is one of the reasons why I wanted you to be aware of her unacceptable conduct. I would hate to have anyone else go through the same experience that I did.


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What do you think? Was I out of line or was she just plain rude & crazy?





Tuesday, May 11, 2010

Day 201 - A Day In The City


Well, today was quite the day. I spent a good portion of the day panicking about all these little things that kept popping into my head… ‘What about this?’ ‘What about that?’ ‘You forgot about this.’ I was pretty much driving myself crazy.

I had a MUGA scan at 1030. A MUGA scan is a scan done to your heart to see how well your heart is functioning. Basically they inject you with a radioactive substance & then scan 2 sides of your heart with a gamma camera. They make a lovely little video of your heart & see what’s beating. It was certainly the lesser of any scanning evils I have had done so far.

As I will be having Doxorubicin as one of my chemo drugs (AKA Red Devil), I needed to have a scan of my heart. Doxorubicin is particularly known for weakening the heart muscle. I’m going to have to muster up a lot of love & keep this ticker strong! :o) I was a little concerned that the MUGA scan might interfere with the fertility program, but after many calls, I was finally told that the Doctor looked it up online & I should be fine. Um, so he googled my potential health risk? He didn’t know before hand? Comforting, real comforting!

The folks at the Nuclear Medicine department were friendly & easy going. I’d been there before for PET scans, but I was in a different section today. I visited with 2 of the technicians about orthotics, camera gear, children, falling in love on a cruise ship & few other things. They had me out of there with 6 minutes to spare until my appointment at the fertility clinic.

I had no idea there were so many infertile people in Calgary. It must be an epidemic! It was crazy busy in there! Both with staff & patients! I waited for about an hour until I finally met with the Doctor. Talk about the wind coming out of your sails. I am one day late to start IVF treatment, which means I will have to wait 5 more weeks before I can start chemo. ONE DAY. ONE DAY=5 weeks of postponed treatment. I’ve had time to deal with it, but I was pretty upset at the time. If only the bloody Doctors had responded to my emails & questions from the ship, I wouldn’t be sitting at this table hearing this crummy news. Ahh. Or if I had a few more hours notice about the previous day’s appointment! But! The good news is, they can help me & it can be done relatively quickly. Most people wait 1 year ++ for treatment. They are pulling a lot of strings to fit me in & I am very grateful for that. I have no idea what my Oncologist will say when I tell him it’s going to be another 3 weeks, but I suppose we’ll just have to work with it.

I’ll ask now for any prayers you might have to offer – that the IVF treatments go smoothly & swiftly without complications & that my body can keep the cancer under control for 5 more weeks without jeopardizing my health any further. Thank you!

I am coming back to the Fertility Clinic on Friday morning to discuss the plan. Fingers crossed!

I left the clinic & headed to Planet Organic for a few goodies. Then I stopped at Jugo Juice for a smoothie & then it was home time. The little doggies were very happy to see me! We spent a bit of time outside & then headed in to get comfy for the night.

I was quite tired by 2100, but I was still up at 2300 when Mom finally made it home from her long day in the city. We watched the dogs play for a bit & then hit the hay.

Here’s to a nice relaxing day tomorrow with nothing on the agenda…

Puppy dog tails & kisses,
Maria & Valentina
xoxoxoxoxoxoxo


Sisters sharing the bed!


Monday, February 01, 2010

Day 103 - Red Devil. Want Some?

Hey Everyone! 


I hope this finds you well & enjoying life! Valentina & I are having a ball over here! She has been very clingy as of late... Not sure why. Perhaps she thinks I'm going to leave her behind again soon! She enjoyed her day shredding everything I gave her. Including a disposable camera. I really didn't imagine she could put it into that many little pieces!


Well, you're probably wondering where the title 'Red Devil' comes from. Last night, shortly before I went to bed, I had the brainwave to look up the CHOP method of chemotherapy. This is the method the Doctor in Tijuana is wanting to use on me. Without boring you too much with the 'minor' details, one of the drugs is nicknamed 'Red Devil' or 'Red Death'. Sounds great, eh? Not quite something I'm ready to sign up for! It also causes cardiac toxicity. Even better! Render my heart weak for the rest of my life! FYI, it was discovered in Italy. I stand corrected. Not everything in Italy is wonderful!


But wait! It gets better! I read on... Next up is bleomycin. (ABVD Chemo protocol) Take this little baby & it leaves you with oxygen toxicity. Meaning? Well, if I ever choose to scuba dive again... BAM. Dead as a door nail. General anaesthesia applies as well, although I think if the Anaesthetist knows of your bleomycin past, you can survive this one. No heart, no lungs, no hair, no taste buds, what's left?


So the 'C' in CHOP stands for cyclophosphamide. That's the same drug I was supposed to take & didn't. I read about it... It is a known carcinogen & can cause secondary cancers, especially of the bladder. Great! Wikipedia says to drink 3.5 liters of water per day to help. At least I would be keeping Purex Pillowy Soft in business a little longer!


The 'P' in CHOP stands for, ugh, Prednisone. The dreaded drug I feel made my condition worse than it was. I was reading & counting the side effects. 13. THIRTEEN!!!! That is ridiculous! Clearly something is not right with this picture. Why on earth should I ever have that many side effects from one little pill?!?!? That gives me thirteen more reasons to go back to the Doctor & get more pills!!!! Argh! My frustration is near the breaking point! Luckily I'm no longer on the drug & do not EVER plan to take it again. If I must do the CHOP, it will be the 'HO' protocol! :o) Hello Santa! 


I also discovered a location in Toronto where I can arrange to have a tumor sample sent to NY. Why? They can culture the tumor & then expose it to the potential chemotherapy my Oncologist wants me to use. They determine the cell death time & how well each chemo works. They compile a report & then I know which chemotherapy will be best suited for my body (is there one? at all?) & which will be ineffective. I'll find out tomorrow!


Okay, so while I'm typing this, I'm not paying much attention to what's happening around me. It's late, so the house is quiet. All of a sudden I hear a gentle thud behind me. It was the cat, Adios, jumping off the island behind me. He is busily licking his lips. Hmm... I study the countertop. There isn't anything scrumptious on the counter... Then I realize he's been licking the butter! Yuck! No wonder he's not losing weight! Gross!


Today I also reconnected with a ship mate I haven't spoken to in years! Five to be exact! Jenny & I worked together on the Grand Princess in 2005-2006. She is from Scotland, but last year she moved to Australia. Lo & behold, she fell in love & is now playing the visa game to get back to her beloved. We enjoyed a fantastic visit - it was just like I saw her last week! Of course she gave a big push for Jaco & I to pick Australia! Gladly! Over this weather any day!


Anyhow, I suppose I should hit the hay for the night... I have to head to Cochrane for blood work tomorrow. Apparently I'm doing an INR test tomorrow. They want to make sure my blood will clot & I won't die on them. Gravy. And there is a possibility that I will be doing a photo shoot in the afternoon! My dearest friend, Cody & his fiance, Kelsy, are making their way around this neck of the woods & they want some engagement photos done, as well as some optics shots for one of their sponsors. Cody has his own hunting show, http://www.live2hunt.com. I'm very proud of him for following his passion in life & achieving his goals & dreams. And I'm even more excited he's found someone who shares his passion & wants to spend the rest of her life with him! 


Thanks for checking in! 18 days until Mexico! Sadly, I realized tonight that I will most likely be flying back from Mexico on the day Jaco is joining his next ship. On our 1st anniversary! Pooh. Good thing we got married three times, so we can just pick the next date! :o) You see, I was thinking! There was a method to my madness! :o)


Lekker slaap,
Maria & Valentina
xoxoxoxoxoxoxox


Sorry, no exciting photos for today... here's a glimpse at what Mom's Photo Booth has captured in the past year-ish...


Chatting with Jaco

Chatting with Jaco while brushing my teeth while taking my picture. Multi-Task!

Apparently the sun does shine in Canada!

Bad day at the office!

My lap cat, Adios

Mom's sexxy new do!

My personal neck warmer

3 cool cats. Mom2, Adios & Moi

Talking to Jaco while being mauled by Valentina. Perhaps Jaco was telepathically sending me kisses & Valentina interrupted the transfer?











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